Thursday, May 24, 2007
OK, fine, I'll call him Pavel!
Monday, May 21, 2007
Vulnerable
OK, I am about to be really vulnerable. You can tell because I began this post with the word "OK".
Last night I went scrounging around the internet looking for some information on FASD (Fetal Alcohol Spectrum Disorder, what Alex has). I was doing this because I know I have recently read many research studies claiming that even a little alcohol drunk during pregnancy can have adverse affects, and I was discussing it with some friends but of course this is a radical claim and I had not memorized my sources so I was trying to see if I could re-find those links. I found plenty of articles and lists and even some YouTube entries (the best one was http://www.youtube.com/watch?v=uip8sv9tCKw), and as I was calmly reading through everything I started to bawl. Not just cry, bawl. I think everyone who reads this blog knows me really well (I would love to know how Mandy knows who reads her blog, that sounds really handy), so you know that I don't do this crying thing often. The last time I cried was when I trusted a friend to watch my kids and she nearly killed them through willful negligence and the very real thought of them dying made me lose it (coupled with total and complete anger toward my friend the likes of which I have never experienced before). Anyway. Back to crying. I was crying for Alex. I was crying for what had been done to him, for how he struggles every minute of every day just to live life and how "normal" will forever be unachievable for him. As he gets older he is going to become more and more aware of the invisible gap that exists between him and everyone else he knows, and already I see him gazing around in bewilderment when he loses control or can't remember something he knows he ought to know.
I've read all these things before, I've even seen a few very moving videos on FASD, so what triggered this? And what is it that was triggered?
I know what triggered it--I have a friend that encouraged another friend to drink while pregnant, because it was really "no big deal" if you only drank a little each day. As for what it is that hits me so hard that I had this sort of reaction...I've been aware all along that Alex's birth-mother's drinking is the cause of his issues, of course, but I guess the total helplessness of my little guy in utero while his mother poured liter after liter of alcohol into her son just sort of hit me. For some reason when I saw the healthy and FASD brains compared side by side (also see YouTube video), the report of Alex's initial physical exam came into my head, the one where they did an ultrasound and there was so much fluid where his brain should have been that they called it "hydrocephalus" despite Alex's very small head. That was his mother's doing. I am sure she didn't mean to do it, I am sure she was struggling with her own awful life and she couldn't get up enough hope or energy to quit drinking and it is very likely that she was unaware of the awful effects her drinking was having on her unborn child. I have no beef with her. Just overwhelming pity for Alex. But my friends, the ones who were comparing notes on how much they drank and were saying these things in front of another friend of mine who was still pregnant (yes, everyone seemed to get pregnant this year) made me feel so frustrated. Alcohol is a known tetarogen (substance causing birth defects). They see that Alex and Sam are two years apart and yet Sam is taller and heavier than Alex. They see that Sam's speech development after two months home from his orphanage is already surpassing Alex's after he has had two years of speech therapy. They see Alex who can't sit still to save his life despite the fact that he is denied every fun or even typical food known to every other child in the church. Of course he had a lot of alcohol in his system during his development but his issues are extreme. By logical conclusion therefore a little bit of alcohol will give you a little bit of his issues...but which ones? Who knows where the boundaries lie? No one. Why do they have to push that envelope? Who says, "oh, a little thalidomide won't hurt this evening, honey." I am certain that Alex's mother didn't think these things through because she was ignorant. But my friends are not.
So I crept into Alex's room and held him and cried and he was so light and felt so fragile and that made me cry even harder because that, too, comes from his mother's drinking. Please don't misunderstand me. I am not crying for myself. We chose him, I am excited to be his mother, he challenges me in ways no one else can and I am grateful for it. I just needed that moment to grieve for him. And now I am finished, and can move on.
Don't drink when you are pregnant. http://www.come-over.to/FAS/LowDose.htm.
Last night I went scrounging around the internet looking for some information on FASD (Fetal Alcohol Spectrum Disorder, what Alex has). I was doing this because I know I have recently read many research studies claiming that even a little alcohol drunk during pregnancy can have adverse affects, and I was discussing it with some friends but of course this is a radical claim and I had not memorized my sources so I was trying to see if I could re-find those links. I found plenty of articles and lists and even some YouTube entries (the best one was http://www.youtube.com/watch?v=uip8sv9tCKw), and as I was calmly reading through everything I started to bawl. Not just cry, bawl. I think everyone who reads this blog knows me really well (I would love to know how Mandy knows who reads her blog, that sounds really handy), so you know that I don't do this crying thing often. The last time I cried was when I trusted a friend to watch my kids and she nearly killed them through willful negligence and the very real thought of them dying made me lose it (coupled with total and complete anger toward my friend the likes of which I have never experienced before). Anyway. Back to crying. I was crying for Alex. I was crying for what had been done to him, for how he struggles every minute of every day just to live life and how "normal" will forever be unachievable for him. As he gets older he is going to become more and more aware of the invisible gap that exists between him and everyone else he knows, and already I see him gazing around in bewilderment when he loses control or can't remember something he knows he ought to know.
I've read all these things before, I've even seen a few very moving videos on FASD, so what triggered this? And what is it that was triggered?
I know what triggered it--I have a friend that encouraged another friend to drink while pregnant, because it was really "no big deal" if you only drank a little each day. As for what it is that hits me so hard that I had this sort of reaction...I've been aware all along that Alex's birth-mother's drinking is the cause of his issues, of course, but I guess the total helplessness of my little guy in utero while his mother poured liter after liter of alcohol into her son just sort of hit me. For some reason when I saw the healthy and FASD brains compared side by side (also see YouTube video), the report of Alex's initial physical exam came into my head, the one where they did an ultrasound and there was so much fluid where his brain should have been that they called it "hydrocephalus" despite Alex's very small head. That was his mother's doing. I am sure she didn't mean to do it, I am sure she was struggling with her own awful life and she couldn't get up enough hope or energy to quit drinking and it is very likely that she was unaware of the awful effects her drinking was having on her unborn child. I have no beef with her. Just overwhelming pity for Alex. But my friends, the ones who were comparing notes on how much they drank and were saying these things in front of another friend of mine who was still pregnant (yes, everyone seemed to get pregnant this year) made me feel so frustrated. Alcohol is a known tetarogen (substance causing birth defects). They see that Alex and Sam are two years apart and yet Sam is taller and heavier than Alex. They see that Sam's speech development after two months home from his orphanage is already surpassing Alex's after he has had two years of speech therapy. They see Alex who can't sit still to save his life despite the fact that he is denied every fun or even typical food known to every other child in the church. Of course he had a lot of alcohol in his system during his development but his issues are extreme. By logical conclusion therefore a little bit of alcohol will give you a little bit of his issues...but which ones? Who knows where the boundaries lie? No one. Why do they have to push that envelope? Who says, "oh, a little thalidomide won't hurt this evening, honey." I am certain that Alex's mother didn't think these things through because she was ignorant. But my friends are not.So I crept into Alex's room and held him and cried and he was so light and felt so fragile and that made me cry even harder because that, too, comes from his mother's drinking. Please don't misunderstand me. I am not crying for myself. We chose him, I am excited to be his mother, he challenges me in ways no one else can and I am grateful for it. I just needed that moment to grieve for him. And now I am finished, and can move on.
Don't drink when you are pregnant. http://www.come-over.to/FAS/LowDose.htm.
Saturday, May 5, 2007
Tidiness
I came to this realization because we had guests last weekend, had a visit from the social worker this weekend, are having guests at the end of this weekend, and Mom is dropping by twice this week on her way to and from Ohio to visit Ella (oh, and Ben and Julie). So I would like the house to be presentable. This has been on my mind for a couple of days now, so I have had an eye toward getting the house clean and keeping it that way. As I was cleaning my room today (which I have to admit is by far the messiest), I would pause every minute or so to put an errant toy in its place or call a child to come put away its underwear, etc.--and I realized that I was acting exactly like Grandma Mickey. Exactly. And that is when I realized that she also had five kids (I never really thought about it before), and at some point they must have been young, and--judging from the way they are now--she must have been picking up after them all the time, just like I have to do. Like she still does, if you have ever noticed. This gave me pause, as well it should--I do not want to be neurotic. So if you come to visit and you notice it is not as tidy around here as it might be at your house, it is because I am practicing for when my children are all grown up and have left the house and I become normal again.
Sunday, April 29, 2007
The Kesslers came to visit
Ben and Julie and Ella came to visit and they were SO FUN to have. Yes, you can be jealous, I don't mind.

Our picnic in the back yard.

Ella on the guest bed (she is actually posing for a commercial for the rest of the extended family, who are all heartily encouraged to visit any time!)

A peaceful moment in the dining room.

Julie and Ella and the cousins.
From the kids
Here are a few things heard around the house recently:
One afternoon I needed to pack but I only had about 45 minutes before we needed to go somewhere for an appointment. So I told the kids they could watch a movie, but not a long one. "How about Little House on the Prairie?" I asked. They all cheered and as I was putting the DVD in I heard Lena explain to Sam: "We are watching LITTLE House on the Prairie because the big one would take too long."
Inga: "You mean when you get things out you should put them away?!" (said with utter sincerity, as if hearing this for the first time!)
A little preface to the next one:
"Pit" (pronounced "peet") is the Russian baby word for "drink". All our kids have a pretty good grasp of baby words in Russian by now, and use them interchangeably with English (however strange the grammar may turn out).
Lena's food quotes:
"I'm fine, I don't want no pit."
"Please don't eat all of them because then your belly will be too full and then you will have a baby--save some for me."
A little preface to the next one:
"Pit" (pronounced "peet") is the Russian baby word for "drink". All our kids have a pretty good grasp of baby words in Russian by now, and use them interchangeably with English (however strange the grammar may turn out).
Lena's food quotes:
"Please don't eat all of them because then your belly will be too full and then you will have a baby--save some for me."
Friday, April 27, 2007
Happy Birthday Megan!!
Thursday, April 26, 2007
That time we went to California
It was like living a completely different life for 1.5 weeks, a life where I had only one child and she was "in the movies". Even though she was only an extra (which is the lowest species of appearance there is, unless you are dead, I suppose), she was treated like a star because she was specifically chosen to fit the movie (being an amputee). We flew in on Tuesday evening and a "limo" (Lincoln Town Car) picked us up to drive us to the hotel. Everything was paid for, by the way, including taxes and all gratuities. Our limo driver told us the last guy he had driven was Russell Crowe.
In the morning we met everyone else they had flown in, all of whom were amputees (mostly congenital) from all over the States. It was easy to tell who was in our group :) We had a bus waiting to drive the kids (and their parents) to their initial costume fitting and hair and makeup evaluation. Then we had to get work permits for the parents who hadn't planned on their kids actually getting into the movie (silly people) and then we had to open Coogan accounts for our kids. Apparently a long time ago a kid named Jackie Coogan made millions and his parents spent it all, so now any child in the movies is required by law to have 15% of his earnings go into a "Coogan Trust Account" where it will earn a pathetic amount of interest until the child is 18 and liberates the money into the real world once more. When we were done with all the running around the kids jumped into the pool, which became a ritual each day from then on (until the kids got their hair dyed the following week). Inga became quite a good swimmer!
The next day the wind was so strong (see photo) they had to close down at least one highway in LA and the set blew over on Mystery Mesa, which is where the movie was being filmed. So we all went to downtown LA and shopped, each amputee determined to spend everything they were earning as fast as possible--and Inga was no exception.
That evening busloads of Afghan people checked into our hotel and the hotels around us (our movie was using up 3 entire hotels). I was told there were 600 Afghan extras in the movie, and over a thousand extras up on the Mesa. There have been few times in my life when I have truly been the minority race...and the rest of our trip was one of them. The amputee children stood out even more now, and everyone knew about them because the other extras were there to provide background for the hospital scenes. No one was a stranger in the elevator. "Are you in Charlie Wilson's War?" a tall, dark man in a beard with a mysterious-sounding accent would ask. "Yes, are you?" I would politely ask in return. Duh. After the first night, by mutual unspoken consent, the political incorrectness of stereotyping was suspended. If you were white and missing a body part, you were in the movie and in the hospital scene. If you were darker and staying at the hotel, you were an extra for the movie in general and maybe even a principal. If you were a white male and wore a business suit, you were probably very weirded out by everyone else.
On Saturday we went to Universal Studios on a VIP tour and saw all sorts of things that were interesting to us but would probably bore you. VIP means you skip to the front of lines, and get 25% off of things you buy. I like it. Inga made her first official purchase using her own money that she had earned and paid taxes on. She bought a dog in a purse (these are very popular) with two different outfits. Brad joined us toward the end (see his blog, I don't know how to make that cute little URL thingy that gets you there just by clicking on the words) and patiently helped her make her decisions. He also carried around a huge stuffed bear that Inga did not win at a game she played, but that people gave her anyway because she thought she had a fighting chance against a whole group of grown-ups. Go, Brad!
We spend the night at Brad's apartment, Inga guzzled root beer and watched the Incredibles, and we went to church and made friends. I won't really say much more than that because Brad basically covered it in his blog.
Monday Inga didn't work--they didn't need the amputees, but they did pay them :)
Tuesday we went to the set to get Inga's hair dyed, and we stayed all day and did school (basically they sit the kids down in the middle of a large tent and tell them to concentrate but no one does because all sorts of interesting things are happening everywhere), and Wednesday we went back and got makeup done. Some of the guys who worked on her had also done Pirates of the Caribbean, and they were very good at making everyone look maximumly disgusting. At first Inga freaked out, totally convinced that they were going to need to cut her up to make her look as awful as the others she had seen walking around in blood and gore makeup--but they were really good with kids, and by the end she was asking for more.By the time they were done, Inga looked horrible, in a cute sort of way. It looked totally realistic, even up close.
The kids got all decorated and then went to the holding tent, where they stayed in school all day, waiting to be called. One by one they "timed out", which means their allowed time on set (according to age) was coming to an end and they had to go back to makeup to take everything off. Before Inga timed out she was chosen to go to a scene involving a lot of hospital beds so she could be convincing background. They had a nurse attending her and were making a big fuss over her, but there was light filtering in from a window in the tent that made her skin shine. In the end she was pulled out by the director, who spoke rather rudely to her because he just wanted to hurry up and shoot the scene and once he decided her bed should be empty he wanted no delay. Inga did beautifully, she did just what she was told and waited quietly on the side while they shot the scene. Meanwhile everyone came up to her apologizing for the director and saying what a great kid she was, and after the scene was shot the director himself came by and did his version of an apology, and told her she was too beautiful to use for a scene like that. Inga bought it hook, line, and sinker, the vain thing.
Oh--I forgot to mention that while everyone was fussing over Inga and the nurse in the bed, Tom Hanks was waiting in the sidelines right next to me and another mom and we got a chance to talk just a little. He really is nice. He tickled Inga's toes as he passed by her bed, but she didn't notice.
Well, back to the timing out. We were scheduled to fly out on Thursday, but had not shot our actual scene. We were told it was cut. Apparently they had to do a lot of that sort of thing since they were so behind. They asked if anyone was able to stay and everyone said they could. They chose three kids from our amputee group to stay on for another scene they had in mind which they hoped to shoot the next day, and Inga was one of them.
Unfortunately Inga had made a lot of friends, and was unhappy the next day when she got up to go to the Mesa and only two others did, both of them significantly older. She was a trooper, though, and held well through the scene (which is one with Tom Hanks entertaining the amputee kids). She didn't eat breakfast ahead of time, and they had whisked her off to makeup when the kids arrived, so she worked for 6 hours before she ate anything (thank goodness for that law that says children must eat a major meal 6 hours after they arrive on set!). She ate a huge amount of very fancy food afterward (the amputees got to eat in the crew's tent, which has really amazing food). She kept her makeup on, just in case, but after lunch we found out they didn't need to do the scene again since the original had been so good (they call it a "one-shot wonder"). We were told by someone who saw it that the director actually cried it was so perfect. He came out afterward to thank us for coming out and to say what a great group of kids we were, which I understand is very unusual for him (he is apparently a very well-known director).
We returned home happy and healthy and exhausted (and in another "limo"). It was great fun doing the movie and Inga already received a check for last week's work. Her hair is slowly turning blond once more, and she misses her friends, but she is a normal child again. I am looking forward to December 25, when the movie comes out, to see if that scene actually made it after all.
That evening busloads of Afghan people checked into our hotel and the hotels around us (our movie was using up 3 entire hotels). I was told there were 600 Afghan extras in the movie, and over a thousand extras up on the Mesa. There have been few times in my life when I have truly been the minority race...and the rest of our trip was one of them. The amputee children stood out even more now, and everyone knew about them because the other extras were there to provide background for the hospital scenes. No one was a stranger in the elevator. "Are you in Charlie Wilson's War?" a tall, dark man in a beard with a mysterious-sounding accent would ask. "Yes, are you?" I would politely ask in return. Duh. After the first night, by mutual unspoken consent, the political incorrectness of stereotyping was suspended. If you were white and missing a body part, you were in the movie and in the hospital scene. If you were darker and staying at the hotel, you were an extra for the movie in general and maybe even a principal. If you were a white male and wore a business suit, you were probably very weirded out by everyone else.
We spend the night at Brad's apartment, Inga guzzled root beer and watched the Incredibles, and we went to church and made friends. I won't really say much more than that because Brad basically covered it in his blog.
Monday Inga didn't work--they didn't need the amputees, but they did pay them :)
Well, back to the timing out. We were scheduled to fly out on Thursday, but had not shot our actual scene. We were told it was cut. Apparently they had to do a lot of that sort of thing since they were so behind. They asked if anyone was able to stay and everyone said they could. They chose three kids from our amputee group to stay on for another scene they had in mind which they hoped to shoot the next day, and Inga was one of them.
We returned home happy and healthy and exhausted (and in another "limo"). It was great fun doing the movie and Inga already received a check for last week's work. Her hair is slowly turning blond once more, and she misses her friends, but she is a normal child again. I am looking forward to December 25, when the movie comes out, to see if that scene actually made it after all.
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